Holey Bones!
I have made a copy of Ambriel’s latest scans. In the photo below you can clearly see the holes that are in her right (your left) femur. These tumors are a result of her “Olliers Disease” You can compare the bone to the other leg to get a full idea of what is in her bones.
In this next scan you can see Ambriel’s fracture as well as the latest tumor growing on the side of her iliac wing. This is the tumor that they are watching most carefully and that is still remaining from her original malignant tumor. At this time they believe this tumor is benign (despite having gone through some changes post surgical). It is open to the soft tissue.
This is a copy of Ambriel’s most recent X-ray. You can see how most of the pelvis is gone on her right (your left) side
Filed under: Blog, cancer, health | Tagged: Ambriel, Blog, child, childhood cancer, Chondrosarcoma, Daughter, Olliers Disease, Photo, photos, Picture
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Your strength in the midst of all of this amazes me. Truly. God bless all of you.
Wow - those are something to look at. Seeing them brings it all home - the reality of what Ambriel and you all are going through. Thanks for letting us see them.
As damewiggy said above, God bless all of you.
You are coping so well with what would make many crumble in a heap - well done for holding it together for your lovely daughter. Hugs.
I’ve been looking at these pictures since you posted them. . . in awe.
To look at Ambriel you’d never know this was happening inside of her.
Keep well!
This is so weird! My name is Tessa i am 11 years old and I was diagnosed with Olliers disease at age 7. Since then I’ve gone through two operations in Baltimore, Maryland. I’ve never met anyone like me before so when I saw your blog I was shocked! I’ve got a blog, too! Isn’t that funny?! If you want to you can check it out at http://www.peach.typepad.com. It’s a horrible disease but I’m sort of glad I’m not the only one!!
L8ter,
TJ (or Tessa)
Tessa!!!
I am so very glad to meet you, Ambriel was just diagnosed last year, but she turns 11 tomorrow…
I know she would LOVE to meet someone who has Olliers Disease. It is such a RARE thing to have…
I am going to check out your blog now!
I ‘ve had Ollier’s disease since I was 5 yrs. old (I’m 49 now) I’ve had 23 surgery’s and recently had a lesion removed from my shoulder and had to have it replaced. Other than the surgery’s I’ve led a somewhat normal life. Just wanted to say hang in there Ambriel your not alone.